Improving support for people with autism
We have been hearing from people awaiting a diagnosis for autism. Concerns are being raised regarding extremely long waiting times for diagnosis and a lack of support and communication while awaiting a diagnosis.
The report, based on feedback from 70 people gathered between January and March 2024, outlines key issues such as long waiting times, lack of information and communication, and insufficient support during and after the assessment and diagnosis process.
Key findings
- Long waiting times: Many people wait significantly longer than the recommended time for autism assessments.
- Lack of communication: There is inadequate communication with people while they are on the assessment waiting list, leading to uncertainty and stress.
- Insufficient information: There is a lack of easily accessible information on autism and the diagnosis process, leaving people to conduct their own research.
- Limited support: Both before and after diagnosis, people are not provided with the support they need, including for mental health; some search for support themselves.
- Need for tailored adult support: Adults with autism expressed the need for peer support groups and services to help with employment and social opportunities.
- Impact of stigma: Stigma around autism continues to contribute to the challenges people experience in their lives.
Read our report
If you would like this report in a different format, email info@healthwatchwolverhampton.co.uk or call 0800 246 5018.
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Improving support for people with autism
